To Whom it May Concern,
I am contacting you today to express my concern over your continued support to an organization that actively hurts me, my son, and my autistic friends.
I know by now you are fully aware of the efforts to bring attention to the harm caused by Autism Speaks to autistic people and their families. You have been notified by many autistic people, parents of autistic children and professionals who work with autistic people of how damaging this charity is,but still give support to an organization that the very people it is suppose to help actively condemn.
Ask yourself this :Why would autistic people be so against an autism charity?
To begin, the language Autism speaks uses to represent us is dehumanizing at best. We have been called lost, kidnapped, missing, diseased, sick, ill, and epidemics. We have been blamed for divorces, suicide/homicide attempts, and making other people (parents mostly) miserable. If you replaced the word autism in the messages Autism Speaks sends out with your choice of gender, sexual orientation, race, or creed, it would be considered hate speech and/or discrimination.
To date, Autism Speaks has no autistic people in leadership roles. Autistic people have tried to work with Autism Speaks and have brought the lack of inclusion of autistic people to their attention many many times. Our words are ignored, we have been given lip service and used a tokens instead of being involved in decision making. "Nothing about us without us' has been the long standing motto for the disability community, but somehow Autism speaks seems to think they are excluded from this.
More funding goes towards research for cause and cure than towards actually helping autistic people. Autism Speaks actively claims we are a growing epidemic, which is totally not true. If you understood the history of autism, you would understand that the criteria and diagnostic processes have changed dramatically over the years, so logically it is NOT a growing epidemic. We have just gotten better at recognizing and diagnosing it. Autistic people have always been around, we didn't just appear out of no where, some of us even breed and have autistic children of our own. (gasp!)
We (autistic people) need REAL CONCRETE help and support. Autism Speaks does not offer that to us. Autism Speaks actively promotes the need to eradicate us over actually supporting us. Their inflated statistics look good at a glance, but when you dig down further you find that only 4% of what they raise actually goes back into the community, and is often "help" that is very hard to access.
We don't need a cure, what we need is support. We need to be involved in making the decisions about what supports work for us. We deserve not to have ourselves, our children and the ones we love talked about as some diseased epidemic that people are afraid of. We need acceptance, not "awareness". We need to be included in all efforts of advocacy for autism.
I understand that by supporting Autism Speaks you believe you are helping autistic people and their families. I would like to believe that you think you are doing a good thing, but I want to make you aware that what you are supporting is damaging to a community of people and not real help.There are organizations out there that are ran by or actively include autistic people that you could be supporting, instead of supporting Autism Speaks.
I am hoping you will reconsider and cease your support to Autism Speaks and consider one of the organizations listed above or another local organization. By doing so you will directly help autistic people, as you had intended with your sponsorship of Autism Speaks.
Sunday, December 22, 2013
Saturday, December 21, 2013
By now you are probably aware of the boycott on Autism Speaks. We've been telling you a lot about the funding issues, the fear mongering and the lies.
I've done a great deal of reading and some research about funding issues as it pertains to Autism Speaks. Something clicked in my brain while I was doing this:
"What have they done for my state?"
That prompted me to do a little digging. I had to know, because once something like that gets into my head, I just can't get it out until I know the answer. So, I started doing a tad bit of research specific to my state and what I discovered were some pretty staggering lies,via their website and email communication with them.
The Autism Speaks website claims to have donated 62 million dollars to my area. I was actually pretty shocked at this number because we have no AS chapters here and we also do not participate in walks.
So, I decided to use that nifty contact us option and ask some questions. I was doubtful about getting a response back, but I felt I had to try. I'm glad I did, because they did reply back.
The truth is that under $40,000.00 in funds has been given to my state since 2008.
Now,I'm not a math genius, but I don't even need to use a calculator to know that is a far cry from 62 million.
This was what was found on their website
Click HERE for larger image
This is the reply I got from the AS contact person:
Click HERE for larger image
Also, notice how she seems to be doing damage control because she probably knew I was onto something.
Another thing I would like to point out is she did not mention research towards cause and cure in this message, I suppose that is the etc.
Autism Speaks mission statement clearly states funding does go towards research for cause and cure.
Upon reading the first email from Autism Speaks I was doubtful they would actually get back with me as they had promised. but once again they surprised me.
Here is the breakdown of funding she sent me.
What a shame they have to lie, but what else is new about them? Someone get them a bucket of water to sit in.
For more information on shady financials and website reporting for other states check out: